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Boy with rare syndrome fights for his life after being infected with Covid

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A five-year-old boy with a rare health condition is fighting for his life after contracting Covid.

Little Rupert Moore tested positive for Covid after he initially started showing symptoms on Nov. 21.

Rupert was taken straight to Margate’s QEQM hospital so they could monitor his symptoms before being rushed to the intensive care unit at Evelina Children’s Hospital in London on Wednesday 24.

Rupert, of Herne Bay, Kent – who also has a rare condition known as Vici syndrome, initially started showing symptoms of fatigue before worsening.

Due to his condition, he is unable to speak, is registered blind, cannot eat, suffers from epilepsy and requires round the clock care.

Little Rupert Moore, 5, tested positive for Covid after he initially started showing symptoms on Nov. 21. Pictured in the intensive care unit of the Evelina Children’s Hospital in London

Rupert was taken straight to Margate's QEQM hospital so they could monitor his symptoms before being rushed to the intensive care unit at Evelina Children's Hospital in London on Wednesday 24.

Rupert was taken straight to Margate’s QEQM hospital so they could monitor his symptoms before being rushed to the intensive care unit at Evelina Children’s Hospital in London on Wednesday 24.

Mother Camilla Crick, 28, was told last week that the five-year-old was unlikely to make it through the next 48 hours, but insists Rupert is battling through the illness.

Camilla, a stay-at-home mom, explains: “On Sunday my partner got a message from work that four people had tested positive for Covid and that same day I got an email from my daughter’s nursery saying someone in the class also tested positive so we all took tests.

“We all tested positive except my oldest, so I called our local hospital, who already knew about Rupert because he’s on an intensive care plan and they told his father to admit him.

“On Monday I found that he had deteriorated overnight and he started to breathe.

“On Wednesday the doctors told me that he is in very bad condition and is not responding to antibiotics and that there is not much more they can do.

Rupert and his mother, Camilla, 28, hope he will be able to overcome this most recent hurdle after her son was diagnosed with Vici syndrome in 2017, which doctors said would not make it past his fourth birthday.

Rupert and his mother, Camilla, 28, hope he will be able to overcome this most recent hurdle after her son was diagnosed with Vici syndrome in 2017, which doctors said would not make it past his fourth birthday.

“We have a care plan for Rupert, so I could have chosen not to put him in intensive care or try to save his life, but I knew he wasn’t ready to go, so they rushed him to the hospital.” Evelina London Children’s Hospital for intensive care. .

“He’s been fighting so far and he’s making small improvements; he can now open his eyes and the infection is slowly going away, but it will be a long process.’

Rupert was diagnosed with Vici syndrome in 2017 and his parents were told by experts that he would not make it to his fourth birthday.

But as he continues to defy the odds, Mom Camilla hopes he’ll be able to overcome this most recent hurdle.

She added: “I have two other children—Levi, nine, and Myla, three—and they both miss him so much.

Rupert, left, pictured with his sister Myla, three

Rupert, left, pictured with his sister Myla, three

Rupert, right, pictured with his brother, Levi, nine

Rupert, right, pictured with his brother, Levi, nine

His family is raising money through JustGiving to help pay for accommodation in London while Rupert is in hospital.

His family is raising money through JustGiving to help pay for accommodation in London while Rupert is in hospital.

“Despite his condition, he does everything with us and is perfectly capable of going on days out and on holiday with the family.

“I wanted him to be treated like any normal kid so I decided to put him in intensive care because I knew he wasn’t ready to go yet.

‘He is always happy; everyone who meets him loves him because he has such a great personality.

“I call him my little superhero because he continues to amaze me and prove doctors wrong.”

Rupert’s family is raising money for housing in London while Rupert is in hospital, and have raised over £2,700 to date.

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